
Hello from the mini-Acre on West Sterner Avenue,
I have to admit today that I am missing my house, and the fire pit area. And yet, I am very pleased with the new (now perhaps not new as it is almost two years ago that I left there) place and what has been accomplished. I need to thank so many people for where I am and how things are going. And yet, as some are aware, the last two months have been a bit of a rollercoaster. Yesterday, I was reminded in ways not anticipated how fragile life is. I am still reeling from the story I listened to, but more significantly to the emotions that came through on so many levels from this amazing woman is quite unlike anything I have experienced since perhaps my clergy times. It seems I’ve found more occasions than usual where I have been confronted with our temporal fragility. From lists of classmates no longer in our physical space to a belated watching of a memorial service of a former colleague (a generation younger), from phone notifications of others involved in accidents to unexpected stories of serious or terminal illnesses, it would be easy to develop a rather macabre perspective on daily existence, and yet, simultaneously and instantaneously, I am reminded of the miraculous ability of our medical ingenuity.
As noted previously, I’ve spent some significant time with my various medical team members attempting to figure out my miraculously altered, and still functioning anatomy. From the first day of physical presence to this morning, my body has managed to provide what is needed for daily existence, certainly not always in a typical or expected manner, but my very writing of this post in a cogent manner is proof of the miraculous ability of our bodies. If I seriously consider my premature arrival and the first approximate 18 months of life, both the singular birthing and subsequent likelihood of less-than-stellar care or nutrition are likely to show a direct cause/effect nature of how our gestation and earliest development have life-long repercussions. This was not clearly evident until the head of neurology at our local medical center spoke to me following a somewhat significant event shortly after my return to Pennsylvania to teach at Bloomsburg. After looking at my MRI as well as previous film from a decade earlier, he said, “The very fact you are functioning as a capable human is a miracle; you could have easily had CP, been grossly [mentally disabled] (he actually used a different term), or other maladies is astounding. And instead your present as an incredibly intelligent person with a PhD. I think what caused his assessment to sort of be overlooked was he found a spot of concern on my face under my eye. That would be biopsied and I would have a MOHS procedure done in the next hour or so. I looked liked I got into a fight and forgot to punch.
As I take on yet another battle in my continuing health journey, it is impossible to not be aware of how our changing abilities to respond offers opportunities to manage things before unmanageable, and yet at what cost? While some of the recording of what my body does is mind boggling, and the pharmaceutical options are astounding in their ability to bring my body into balance (and there is a literal sense to all of this). And yet the drugs, on one hand do have consequences know while the other drug is so new there are no long term studies though it seems to be a somewhat wonder drug. There is the actual cost without insurance, which I do not pay, but the cost per month is more than I could imagine trying to pay. While I am well aware of the stories of how people are forced into life- changing decisions regarding medication, it seems I too could, more likely than not, be such a person. In fact, I was encouraged to begin a couple of the drugs because trying to begin them on Medicare is much more arduous. The reality of such a statement is ludicrous, but that is the cost of maintaining one’s health in America. This is not a new understanding, but it is a new personal realization, and that is in spite of being significantly acquainted with the reality of hospitals, doctors, and a plethora of health care people for half of my life. It does not go unnoticed that with one rather memorable exception, I have been profoundly fortunate that the 100s of 1000s of dollars have been covered. My consideration of coverage and what happens with my life has most often been simply pay my deductibles. Again, I know that is not the experience of many.
This time, in spite of no hospitalizations, has been more eye-opening than probably 98% of my medical interactions. Perhaps my first major surgery in December of 1986 is more extreme in terms of a shock to my daily reality. There is also a reality for me in that surgery was the beginning of much of current difficulty. It was the first of numerous intestinal surgeries that would revise my GI track in some substantial manner. At the time, barely into my 30s, I realized the seriousness of such a substantive revision, but I am quite sure I had no inkling of what could follow. And now, more surgeries than I have fingers; more procedures than I have fingers and toes; and numerous complications of the complications (seriously), the teamwork and attention of so many doctors, specialists, or nurses as well as the care of friends and family has been tremendous, and they deserve so much credit and appreciation for the fact I am sitting on a plane writing this today. . . . So I am four days into a return visit to places I first experienced as an 18-19 year old. At that point I was amazed at the beauty and cultural differences of the 50th state. My exploration of the big island was always with my fellow Marines, and it was a different time in our world. This visit I am still stunned by the incredible beauty of the water, but I did not remember the black beaches. And while I visited both Kona and Hilo, but I do not remember anything as I have returned. Again, of course, it is a half century, and I am quite sure I was walking different parts of both cities as a young military person. What I know now is some medical things experienced even then were precursors of what would happen in the decades to come. As far as my return to Hawaii, it is nice to return, but I do not need to do it again anytime soon. Again, the beauty and experience has been quite eye-opening. I think I am content to be a mainlander.
Even today, I was working with local pharmacies to manage today’s medical requirements. I am fortunate we have the connections and capabilities today. I was able to get what I need to manage my daily monitoring. Even more helpful was my ability to get only one instead of all three. It will suffice in getting me home. I will need to plan more effectively going forward, but that is on me and not the fault of the medical establishment. Even as I have tried to work with various pharmacies, I was reminded of how fortunate I am to have the latest available options. Not every pharmacy had that available or in stock. Likewise to have the money for a single part of the larger typical 3-pack was fortunate because it is not inexpensive. The four prescriptions that are now required are beyond expensive, but at least currently I am still employed and have insurance. The reality of what is to come, however, is not unnoticed, and something that must be considered.
We are amazing and incredible resilient instruments. I have lived that resiliency and continue to do so. When I get home, I have more appointments to schedule, but the complexity of scheduling has become infinitely more difficult. Because of some requirements, I have to schedule other things, which will take significant time into 12 hour windows that only occur every 10 days. Because of some pills, I have to schedule food and such around all of that. More over, most importantly, this is not something to take lightly. What I am profoundly aware of is this: in spite of the unparalleled manner by body has adapted over the last three decades, it now needs additional help. And yet medical advances made the possible management once again within reach. Yet again, it seems that adage is still needing to grade papers is still true. For whatever reason, I have been given the continuing option of living life with a great degree of normalcy. Once again, I have been provided the profound gift of continuing a life of purpose and promise. To all of my medical attendants, pharmacists, physicians, and caregivers, both personal and professional: thank you seems tremendously inadequate. And yet, it is what a offer. With gratitude and humility, I say thank you and bless each of you for giving me so many chances to stay alive and productive, to live a life of promise and hope. It is a wonderful world.
Thank you for reading.
Dr.Martin









